Monday, September 26, 2011

I am NOT my Diagnosis!

After reading an article on the net about a daughter who had a mom with DID and how she told her friends about her mom and their reactions I feel some guilt. My children were hesitant to share with their friends about me because they weren't sure if they would still have a friend once they learned of my disorder. It really wasn't the children who were afraid or concerned it was their parents who had issues. A lot of kids were told not to play at our house because I was considered crazy or dangerous. It was so unfair to my kids! Their friends whose parents did take the time to understand and learn about DID are the ones who allowed their kids to play with mine. I feel sad that my kids had to live a sort of sheltered life in a way. Here I was as an advocate for not keeping family secrets after what happened to me and then I found myself telling my children to not say anything to anyone. I am beyond that now. I am not ashamed anymore and I can say with confidence that I am NOT my diagnosis. It is only a portion of who I am as a human being. Sure, I have 25 distinct personalities but as ME I have lots to offer this world and so do all the others who share my mind and body.

I realize now that the people who don't want to try to understand or who label me crazy are people I wouldn't want in my life anyhow. There is such a stigma attached to DID thanks to Hollywood and those who impersonate DID for attention. I want to break the stigma of being insane, dangerous and possibly being a faker. I don't understand anyone who spends the time or the money to feign a mental illness. I know too many people with DID in the internet community to realize that this is a very real and serious disorder that needs to be brought to an awareness in society so we can all get the proper care and treatment that we need so badly. I think if more people could understand us and see that we can function in society we would lose the negative stigma. I think of my children's friends and the parents who were willing to take some time to either ask questions of me or read a book. I think of how they have made a positive impact on their children who are grown now and will most likely have an understanding attitude towards mental health in general. All because their parents cared and allowed their children to see for themselves what DID is all about.


  1. My brother once told me that "YOU EMBRACE YOUR DISEASE". I told him that it is not a disease, it is and was a coping mechanism. He still belittles me every chance he gets. I have Fibro and arthritis to the point of having joints replaced, yet..I am also a cancer survivor. but I am on disability, so I am a total failure in his eyes. I try to say it makes no difference what he says, but it still hurts.
    Bren of The AllWithin

  2. Super big hugs to you. Just remind yourself that you are indeed a survivor and people like him will rarely change for the better. You are not a failure! He sounds toxic and I think you should avoid him in the future, just my opinion.